The abilityNEWS Daily

The Big Story

Only 1 in 7 women know about the deadly virus that disables 400 babies a year

Cytomegalovirus (CMV), a common virus passed easily between toddlers and pregnant women, is the leading infectious cause of congenital disability in Australia. And yet, most Australians have never heard of it.

CMV disables more children each year than Down syndrome or spina bifida — and yet it barely registers in the national consciousness.

And that’s what’s driven Cerebral Palsy Alliance to spearhead CMV Awareness Month throughout June — a campaign to lift the lid on the virus, push clear prevention messages, and put this silent threat on the public health agenda.

This year saw signs of progress. National media coverage via platforms like Mamamia and Kiindred helped carry messages beyond the health sector and into households, where the virus often spreads undetected. But one chilling statistic still dominates: only 14% of women aged 20–40 know what CMV is.

Every year, more than 400 babies are born with lifelong disability caused by congenital CMV. And yet, simple steps — like not kissing toddlers on the lips, or not sharing food and cutlery — could prevent many of these infections.

Throughout June, CPA focused not just on families, but also on frontline healthcare workers. A raft of free resources — from e-learning tools to research bulletins and a CMV prevention network — was distributed to midwives, GPs and obstetricians.

The message is simple: awareness saves lives. And while June has ended, the work continues.

The Briefing

What the sector is saying

Key Priorities agreed for mental health reform

by National Mental Health Consumer and Carer Forum

In May 2025, the National Mental Health Consumer & Carer Forum (NMHCCF) agreed on key insights across four priority areas: Consumer and Carer Leadership, Advocacy, Psychosocial Disability, and the Peer Workforce. The NMHCCF hopes these discussions will shape national mental health policy.

New NDIS legislation still missing autistic impairments

by Autism Aspergers Advocacy Australia

Advocates say new NDIS legislation fails to recognise core challenges faced by autistic people in daily functioning. Concerns are growing that the framework overlooks specific cognitive and sensory impairments key to autism support.

Suicide Prevention plan a part of state-wide approach

by Mental Health Australia

The SA Department of Human Services has outlined its first Suicide Prevention Plan as part of a broader mental health strategy. Shaped by community and lived experience input, the plan aims to support wellbeing and reduce suicide across the state.

$755,000 in Grants supporting community-led projects across South Australia

by SA Department of Human Services

Thirty-nine small organisations across South Australia have received more than $755,000 for local projects under the Grants SA scheme. Funding supports regional and remote initiatives focused on youth leadership, disability inclusion, and accessible community spaces.

Luke addresses the world stage

by Inclusion Australia

Luke Nelson, a Policy Officer with Inclusion Australia, spoke at the UN on artificial intelligence and intellectual disability. He was one of 15 Australians with disability invited to the global CRPD conference on inclusion and human rights.

Nelson speaking at the UN

The Wrap

The latest stories

NDIS physio cancels complex disabilities clinic after payment cuts

by My City Logan

A physiotherapist has blamed cuts to National Disability Insurance Scheme (NDIS) workers’ payments for abandoning plans to establish a clinic at Kingston. Meg Lowry has sought to open a physiotherapy clinic for locals with complex disabilities since 2021, investing her “life savings” to buy a block on Jeurs Street and spending more than $100,000 on plans and approvals alone.

NDIS travel allowance cuts will leave remote clients without care, Goldfields health providers say

by Kimberley Echo

Member for Durack Melissa Price has slammed new changes to the National Disability Insurance Scheme, warning the reforms will hurt regional WA’s practitioners and their clients. The changes to the NDIS Pricing Arrangements and Price Limits, which came into effect on July 1, are part of the Albanese Government’s push to rein in the scheme’s rising costs. The plan aims to reduce annual spending growth from 15 per cent to 8 per cent by aligning therapy prices with national benchmarks.

NDIS overhaul: from chaos to clarity

by Corowa Free Press

After 12 years of confusion, cost blowouts and an explosion in provider numbers, the National Disability Insurance Scheme is undergoing significant reforms to return the scheme to its original intent and ensure its sustainability. The NDIS was lauded but it quickly became apparent the system was difficult to navigate and susceptible to fraud and misconduct.

'They're making it impossible': NDIS cuts linked to emotional meltdowns

by Newcastle Herald

Children as young as four in the Hunter Region are missing out on early intervention due to NDIS cuts, Newcastle psychologist Jacqui Smith says.

Regional leaders slam decision to cut travel funding for NDIS participants

by About Regional

Member for Riverina Michael McCormack and National Rural Health Alliance (NRHA) Chief Executive Susi Tegen have slammed the National Disability Insurance Agency’s (NDIA) decision to cut cost limits and travel funding as part of the Pricing Arrangements and Price Limits (PAPL) scheme following its yearly financial review.

Grattan Institute urges big changes to save the NDIS

by Region Canberra

The National Disability Insurance Scheme is in trouble and must be saved, but that doesn’t mean it needs more money thrown at it, according to a newly-released study into the service. The Grattan Institute has released its latest report, Saving the NDIS: How to rebalance disability services to get better results, saying the scheme’s future is at stake because it has grown too big too fast.

'I was told my cancer was terminal. What the NDIS said next left me speechless.'

by Muma Mia

But the most painful part of Tracey's experience, she says, hasn't come from her illness, it's come from the system meant to support people like her. "Trying to access the NDIS (National Disability Insurance Scheme) has been one of the most disheartening parts of this entire journey," she says. "I've applied multiple times, and every time I've been rejected— I've been told I don't qualify.

Disability carer 'misjudged' turn before causing crash that killed her client, court hears

by ABC

A disability care worker "misjudged" a turn and accidentally accelerated, causing a crash which killed her client — a grandmother who was enjoying a family holiday, a court has heard. Mahnoor Malik, 21, previously pleaded guilty to charges of causing death by careless driving and aggravated driving without due care over the crash which killed Debbie Johnston near Victor Harbor in September last year.

Pheobe Bishop's big sister with her mum's NDIS client sparked a furious row

by Daily Mail

A photograph of Pheobe Bishop's big sister clutching a bong inside the home of an NDIS client of her mum's firm has sparked bitter legal threats amid a furious row. The picture showed Kaylea Bishop apparently holding a bong while sitting with a client of her mother Kylie Johnson's NDIS company, Smiley's Support Services.

The Diary

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