The abilityNEWS Daily
The Big Story

Zara during cord blood treatment (Image courtesy Cerebral Palsy Australia)
Australian First: Six-year-old receives groundbreaking umbilical cord blood therapy for Cerebral Palsy
Zara, six, sat on a hospital bed surrounded by her family. A play therapist distracted her with toys while, via a thin IV line, a small but powerful gift flowed into her veins — her own umbilical cord blood. It was a moment 18 months in the making, and the culmination of tireless advocacy, scientific rigour, and institutional coordination. Most importantly, it was a moment of hope.
The procedure, carried out at Monash Children’s Hospital in Melbourne in April 2025, is the first of its kind in Australia: an autologous (self-donated) cord blood infusion used as therapy for cerebral palsy. Backed by Cerebral Palsy Alliance’s Research Institute, the treatment was enabled through the Therapeutic Goods Administration’s Special Access Scheme, in partnership with Cell Care and Hudson Institute of Medical Research.
“This is something new in Australia,” said Professor Michael Fahey, Zara’s treating neurologist. “No one has received autologous cells in this setting before. We had to plan every detail to the minute to ensure safety and compliance.”
Cord blood therapy has been researched internationally for over a decade, showing promise in improving movement and neurodevelopment in children with cerebral palsy. But until now, Australian families have had to travel abroad to access it — often at great personal cost. CPA estimates hundreds of families have done just that, despite growing demand for local treatment options.
Dr Megan Finch-Edmondson, a senior research fellow at CPA, has been a key driver of the push for local access. “This therapy is not a cure,” she said, “but it has demonstrated safety and the potential to improve functional outcomes for some children. For families, even a small gain can mean a major difference in daily life.”
Author’s Note
The lead story in today’s Wrap is a well-told and highly emotive picture of a family determined to ensure a cherished daughter grows up surrounded by the support and love necessary for everyone, with or without a disability, to thrive.
Last Monday’s lead, by psychologist Scarlett Wong, was equally powerful in describing the particular pain suffered by vulnerable people with disability in the Gaza strip.
abilityNEWS is focused solely on the situation of people with disability. When, however, as a matter of policy, not enough food is allowed in day-after-day to feed everyone, it does becomes difficult to distinguish exactly how such a situation differs from genocide.
The Briefing

Image courtesy UNDRR Prevention Web (Joost van Beek/flickr)
NDIS arranges urgent support for people affected by flooding
by NDIS
The NDIS is urging anyone affected by the floods on the NSW coast to press '6' when they call 1800 800 110. This will ensure your call is prioritised. If people affected by the flood need urgent repairs or replacement of assistive technology, the NDIS National Contact Centre can help get funds authorised over the phone.
Protecting Young Ears: A Virtual Summit
by Deafness Forum Australia
Experts from Murdoch Children’s Research Institute and Cerebral Palsy Alliance led a summit on childhood hearing loss prevention. The online event focused on risks linked to disease and medications affecting babies, children and teenagers.
Gout is a critical issue for more than a million Australians
by Arthritis Australia
More than one million Australians live with gout, yet the condition remains misunderstood, stigmatised and often dismissed as self-inflicted. Arthritis Australia is urging proper treatment and awareness to reduce long-term damage and serious health risks linked to gout.
Help change communications networks so they become more inclusive
by Australian Communications Consumer Action Network
Physical Disability Australia reports ACCAN (the Australian Communications Consumer Action Network) is seeking insight from people with disability to improve inclusion. Key concerns include emergency contact options, service affordability, and whether providers are offering sufficient support and information.
LIFE WITH DISABILITY - A healthy relationship
by Summer Foundation
Chris, 45, who lives with an intellectual disability, ADHD and Fragile X Syndrome, shares a home with his mentor Marven. Their co-residency has improved Chris’ health, independence and social connection, fostering a friendship built on respect and support.
LIFE WITH DISABILITY - Living my best life
by Summer Foundation
Meghan, 38, who has an intellectual disability, now lives independently in Melbourne with support through the NDIS and Milparinka. Her tailored living arrangement has boosted her confidence, enabling her to work, socialise and manage her home with minimal assistance.
TikTok Rolls Out New Accessibility Updates.
by Centre For Accessibility Australia
TikTok has introduced expanded features to support users who are blind or have low vision, including alt-text for images. Updates also include improved text contrast, auto-captions, and support for bold text settings across the app.
How to 'flourish'? A new global study's seeking the answer
by The Australia Institute
The Global Flourishing Study analyses wellbeing across nations, highlighting cultural and economic influences on how people assess life satisfaction. Researchers surveyed over 240,000 adults in 22 countries to evaluate mental health, purpose, relationships and financial stability.

The Wrap
This family didn't just try to fix their daughter's Deafness — they embraced it
by ABC
They made a decision many other parents wouldn't have and one that fully embraced her Deafness — for the whole family to learn Australian Sign Language (Auslan). Thanks to the use of cochlear implants, 14-month-old Charlie can access the hearing world and has started learning spoken English as well.
NDIS-approved disability accommodation company shuts down amid investor allegations
by ABC
Ms Crumpton is one of eight investors with a NDIS-approved disability accommodation company called NDISP who fear they've been ripped off. Asked about investor complaints the sector watchdog said it was "looking into concerns raised about this provider", which manages a $200 million dollar portfolio of more than 140 homes in Queensland.
‘Secrecy’ clouds non-NDIS disability help
by The Australian
A new system of services for people with milder disabilities no longer eligible for the National Disability Insurance Scheme is shrouded in secrecy and uncertainty, according to advocates who are still expecting the rollout of “foundational supports” within the next month.
The Diary
